Isa trying out her new Prosthetic Leg

Back to school

Isa had a long vacation but know has trouble getting up and going to school. This morning she had a tantrum (is there just thing of a tantrum on a 14 yr old LOL) did Not want to go to School today. OMG I had to drag her out of the house (she was crying) to get her to school. I feel like a bad mom but know she is missing a lot of fun activities at school and her friends miss her too.

HOLD ON

ISA IS DOING ALOT BETTER. LIKE IF NOTHING EVER HAPPEND. I CAN'T BELIVE THAT I ALMOST LOST HER EVEN THE DOCTOR SAID "WE LOOSE ALOT OF KIDS THIS WAY".

ISA'S RESULTS

I JUST HEARD SOME GOOD NEWS ABOUT ISA TODAY. SHE HAS PCP OR (Pneumocystis pneumonia). SHE IS NOT OUT OF THE WOODS, BUT SHE WILL COUNTINUE TO RECIVE ANTIBIOTICS. SHE LOOKS AND SOUND MUCH MUCH BETTER TODAY. THANK YOU ALL FOR THE PRAYERS. GOD IS GOOD

RESULTS FOR TODAY OCT. 3 2012

ISA HAD A CT SCAN THIS MORNING AND THE DOCTORS SAID IT IS PNEUMONIA AND SCARING OF THE LUNGS DO TO RADIATION. WE HAVE TO OPTIONS THE FIRST ONE IS DOING SURGERY TO SEE WHAT TYPE OF PNEUMONIA IT IS. SO THEY CAN DO A BIOPSY TO GIVE HER THE RIGHT ANTIBIOTICS AND THE SECOND OPTION IS BUT A TUB DONE HER THROAT TO WASH OUT THE LUNGS AND CATCH THE FLUIDS THAT ARE IN HER LUNGS TO DO A BIOPSY.THE DOCTORS ARE RULING OUT THE FIRST OPTION BECAUSE ISA WILL NOT DO GOOD WITH THE ANESTHESIA .SHE IS NOT IN PAIN BUT DOES REQUIRE OXYGEN.WHEN ISA MOVES HER OXYGEN LEVEL GOES DOWN TO 60. NOT GOOD

Admited

Isa has been admited to the Hospital today. The Xray shows somthing in her lungs ,but not sure what it is. At first they said it was namonia then they said not sure. Doctors are finding out what to do next.
PLEASE GOD DON'T LET IT BE SOMETHING WORSE

FINALLY OUTSIDE

FINALLY AFTER A BAD SINUS INFECTION AND A FEVER SHE IS OUTSIDE ENJOYING THE GOOD WEATHER. SHE HAS MISSED 7 DAYS OF SCHOOL SEPT 20 TO SEPT 28. BUT SHE IS DOING MUCH BETTER. IAM SOO HAPPY TO SEE HER SMILE :)

Isa's New Violin

I WOULD LIKE TO THANK MYERS MUSIC OF BLUE SPRINGS FOR THE VIOLIN. ISA REALLY LOVES IT. THANK YOU  SO MUCH

Kio giving Isa a kiss

Isa and Kio chilling

Isa's Results

The damage done by radiation therapy caused complications to Isa's lungs. Isa will have scarring of her tissue on her lungs, known as fibrosis. Fibrosis of the lungs can show up years after the actual radiation treatment but in Isa's case it showed up to soon. That's way Isa has chronic shortness of breath. She is know taking medicen and is having test done but will not know anything till Aug 31.

Ias and her sisters at Crown Center

Isa with attitude

Isa has not let me take any pictures of her lately. She is being a typical 13 yr old lady with attitude (lol) which that to me is a good thing. Just hope the attitude won't last to long (lol). I will try to sneak in  a picture soon.
 Isa is still having problems breathing. It's like if she has asthma.We are going today to see the Pulmonology Doctor. Just praying that the radiation didn't damage her lungs. Please keep praying for Isa. She has been in remission for 2months and praying that she would no longer go threw it again.

Back Home

Isa is back home! She was admitted to the hospital on July, 19 for low oxygen.This was all do to radiation treatment. She was dischared on July 26. She is gald to be home.

Isa enjoying the hot weather in Oklahoma City at the Hotel

Isa at the ER  far away from home in a little town.

ER

Well, this was a scary trip coming back home. We decided to take a trip to Oklahoma City to visit grandpa where he was working. Stayed there for 4 days. We had to come back home in time for Isa' s CT scan on Thursday the 19. On the way back home one hour away from Wichita KS we had to call the Ambulance cus Isa was having a hard time breath. Her oxygen level was 76 (very low). We were at the hospital for 4 hour and still had 5hours to get home.  We ened with a portabel oxygen for Isa. We traveled with Isa her three sister and her three cousins. Kids where tired and bored but we made it back in time (2am). What a trip to remember. :)

Radiation

Isa is finally done with radiation (June 28,2012). SO Happy.
Isa has been complaining of shortness of breath since July 4,2012. I took her to the Doctors and they said it was the side affect of radiation. Hope this goes away soon ,so she can be her old self again.

Infection

Isa had her Hickman removed on June 14, 2012. On Sunday we ended up at the ER with infection on her incision site. I am scared that it won't heal properly. There is lots of nasty oozing and it is very red but docotrs told us its not that mad. Radiation has stoped for know, it's mean two days. I hope we gat back on track. Isa really wants to go swimming.

Radiation

Had an appointment today to meet with the doctors about Isa having radiation. Well it turns out she will start on June 7,2012 for ten days. She will low radiation and should have no burning to the skin.

Back Home

Isa was discharged on Tuesday 29,2012.  She was soo happy to be out  :)

Kidney Stone

So, we had an appointment on Sunday 27 for labs to see if  her platelets where going up. We got the results and they still low but did not need and platelets. After the appointment we decide to go to Crown center. So when we got there Isa started complaining of back pain. Well it got to the point that we ended up at Children's Mercy Hospital ER and got admited. The doctors did some tests and found out she has a kidney stone that is in the boarder line of not passing it on her own. Isa has been in the hospital seen then.

NG Is Out

Today Isa got her NG Tube out. It was so exciting and tearful  to see her sooo Happy. It was bothering her to eat so, the Doctors decided to pull it  out. Once the NG Tube was out The first thing out of her mouth was " Mommy can we got to Golden Corral". She made my day. :)

Going Home!!

As some of you know Isabel will be going home today.  She will be on a NG Tube (feeding tube threw her nose) till she can tolerate solid foods. Isa has been waiting for this day.

Mommy nurse

Ok, So here I am at the hospital. For the first time, I get to stay with my baby girl Isa. I (mom) have to learn how to change her dressings, and clean her hickman catheter. So I will be her nurse at home. Better being at home than at the hospital in a small room. Glad she's going home, we miss her.

Not feeling to good

Not feeling to good this week. Isa got blood transfusion and some platelets. She also got the mouth sores and has being getting fevers but keeping it under control. The doctor said she mite go home Wednesday the 30 if she eats and has no more fevers.

Surprise From Grandma

Thank You for the Stuff Grandma Linda

First Week In The Hospital

Isa had her stem cell transplant today and everything went well. She is starting to feel the after math of the chemo (nausea and very tired) no mouth sores yet, let's pray she dose not get them at all. I will try to post more pictures of Isa in the hospital. She is not letting me take pictures of her (understandable). She not feeling good. Well hope this week goes by fast. :)

Isa's Second Day In Hospital

Isa coloring and her sister Eliza playing the nintendo

Isa and Carla

Isa and Carla had so much fun that the next day they where sore from riding

Isa's Last Day Before Her Admit

Isa riding a Horse at a friend's house

Isa age 4

Last Round Of Chemotherapy

On Monday 9 she will be admitted to Children's Mercy Hospital to place a Hickman Catheter ( A Type of Central Line).
On Tuesday 10 Thur Saturday 14 she will have Chemo three times a day for five days straight.
On Sunday15 she will have no more chemo.
On Monday 16 she will have her transplant.
Then it all depends on Isa when she will come home. It can take up to a month.
Please pray for Isa we need all the prayers for her fast recovery.

Back to the ER

On Wednesday 14, 2012 we went to the ER for a high fever. The Hospital is full and we are waiting for a room for Isa . We arrived at the Hospital at 8:03pm. It is now 2:22am and the nurses just told us that Isa has a room. I still have to drive back home 30 min. away with my 2yr old daughter. Man we are tired. Goodnight!

Isa

ISA SPIKED IT UP

Update

Once again Isa is done with her second round of chemo. She
is doing good and hanging on.
On March 26 she will be admitted to Children’s
Mercy Hospital for her cell harvesting for 2 or 3 days. She will also be admitted
on April 9 to May 9 for high dose of chemo. Afer her chemo comes radiation but, have no idea when or how long.

Isa's Second week

Isa's Second week of Chemo March 5th thru the 9th

Isa's new do

Isa's hair is falling off,so we decided to get a hair cut.

ER Feb. 22,2012

ER Feb. 22,2012

Isa was rushed to the ER last night do to low blood count. She was transferred to Childrens Mercy. Donig much better and maybe going home on Saturday

Love this Picture

Counting the days

Just to think that Isa is starting chemo Monday makes my stomach hurt. I hate to see her down to earth when she's on chemo. I hate that I cant take this away from her and telling her that everythink is going to be ok. :(

Bad News

As some of you know Isa's cancer came back on the lungs and had surgery on Feb.1 2012 to remove the three tumors she had. She is still at the hospital and she can't wait to get back home. Isa will have her surgery again to put a port in. She will also start chemo on Feb 13 for five days straight. Please pray her.